Logo
To Transplant and Beyond
The Website Has Been Free For Over 13years
Please make a donation to help it stay that way

Every Penny Really Does Count - Thank You.
Donate Nowrotating coin
Home : About Us : News : Personal Stories : Procedures : FAQ's : Talks : Photos : Contacts : Fundraising : Media


Personal Stories
Dr. Christiaan N. Barnard
Sir Prof Magdi Yacoub

Donors
Steven Tibbey
Denise Darvall
Rebecca Nix
Natalie Brown

Artificial Heart
Jim Braid
Matthew Green
R
obert Tools

Heart Transplants
Children

Andrea Barrett
Shannon Curran
Emma Grace George
Ashlea Jerome
Leslie Keown
Jade Licence
Shawn Middleton
Hannah Pudsey
Lizzie Rogaski

Adults
Post Op Diary
Louis Washkansky
Carol Agle
Trish Byng
Micky Byrne
Reg Chisholm
Delia
Mike Doyle
Gay Eberhart
Jill Edwards
Maria Encalada
Bob Enos
John Fisher
Mick Foster
Steve Henderson
Buddy Hickey
Tanya Jones
John McCafferty
Derrick Morris
Bob Pitcock
Charlotte Jane Tate
Ann Woodbridge

Heart and Lung
Diana Chandler
John Rueben
Peta Capello

Domino Transplants
Peter Allinson
Shonqueela Mallory
Andrew Wilson

Lvad's
Jonathon Holmes

Carers Story
Helen Nutman
Sandra Taylor

Waiting For Transplant
Diana Chandler


Lizzie Rogaski
Heart Transplant April 12th 1999

Lizzie RogaskiMy daughter Lizzie was born early, at 27 and a half weeks, she weighed 2 lbs 14 oz. She had a very rough time but finally I was able to bring her home.

I had a 1 year old at home so I would sometimes compare them at the different stages babies go through, she did really very well until she was about 2 then I noticed that she was so much more quiet than her sister as well as very pale, but then she was blond and her sister was dark haired. I became concerned with her progress more and more as time went by, she had no energy and when she did play she would sometimes fall asleep during her play. I of course had been taking her to her pediatrician and she said nothing was wrong and that I should stop comparing the kids.

As time went by I became more and more concerned and started taking her to many different doctors, some of them even told me she was a lazy child. Deep in my heart I knew something was very very wrong so I didn’t give up taking her to different doctors.

Then 1 week before her 5th birthday a small town doctor told me he may have heard something different in her heart beat and sent me to his colleague who was a pediatric cardiologist, this was to be the first of many echos, within 5 minutes of the start of the echo the room filled with a group of doctors. They came into the room after I got her dressed and a nurse took her to color a picture for me and the doctor told me that Lizzie was very sick and close to death, and the only way we could save her was a transplant as soon as possible. I remember feeling like I was in a wind tunnel and I could hardly hear her, I started to shake and cry, I felt very alone as her dad and I were divorced at the time and my family all lived a long distance from me. I took her home and within a week I was at the Mayo clinic in Rochester Minnesota going through the process to get listed for transplant.

Lizzie RogaskiLizzie got her new heart on April 12th 1999. After she had been in surgery for several hours the doctor came out and told me that the new heart wouldn’t beat on its own and they hooked her up to a heart lung machine. My knees buckled and I fell to the floor, I again pulled myself together and waited until the time I could see her, it took a long time due to the difficulties they were having with the heart.

When I saw her for the first time I was shocked… so many tubes and wires I was so scared for her, her lungs started to bleed and they talked about the fact that they were doing everything they could that it was all in Gods hands at this point. I prayed and prayed for my baby. After about 4 days they told me that she needed to come off the ECMO due to the fact it was beginning to damage her other organs, this was terrifying. I had asked the doctor what would happen if the heart still didn’t beat on its own and she told me that at that point there would be nothing they could do for her. After what seemed like hours the nurse came and told me that it was beating on its own!!!!

She stayed in the hospital a total of about 3 months and we spent another month at the Ronald McDonald house there in Rochester. During all this time I had my other daughter with me as much as possible and when I couldn’t she stayed with my mom.

Lizzie has done very well since her transplant with only 2 episodes of rejection, both of them minor.

She does have some learning disabilities and memory trouble so I home school her to help her avoid the torment of the other kids at school… we tried public schools and it was a disaster for her.

Today Lizzie loves animals and really wants to be a model, she also loves photography, her phone and the computer. She is full of life and a real joy to be around. I thank God every day for my girls.

Lizie Rogaski

 


Tanya & Vinnie
Tanya Jones
Heart Transplant 1987

"It took me more than two years before I felt confident to go out without feeling anxious and self-conscious."

Copyright © John Fisher : Site Map : T & C's : Links

Registered Charity No 1106248